Scott and I would appreciate your prayers as he gave us a bit of a scare this afternoon. As the nurses were doing his dressing change at our house it appeared that he had a mini stroke. When the ambulance tendons had him in the ambulance he was starting to respond again. After a CT scan and blood work he spoke with the doctor and his oncologist and they feel it was actually a seizure related to the car t side effects. He is back to his usual joking self. He remembers being consoled in the house and yelling when taken into the ambulance because it was so cold. The anti-seizure medication that he was weaned off of a week ago will be reintroduced and he will stay in the hospital in Kitchener for at least the weekend so they can monitor him. "
Now I will jump to the stay at Kitchener Hospital Dec 4 to 8 and my WhatsApp text.
"Well I have had all kinds of tests over the last several days. I appreciate their determination to be thorough and cautious and as much as possible arrive at the root cause of my episode last Thursday. I have had a EEG of the brain, ECG on heart, MRI on brain, MRI on spine, chest xray and various physical and cognitive tests.
One doctor described recovering from Car T brain related side effects like recovering from a concussion. I know I have certain sensitivities to things so I can agree with that. I have met with many medical people it seems, but today I met with Dr Myers, a neurologist. She is still waiting for the EEG of the brain but at this point is leaning towards either a fainting episode of some sort or a seizure. Her thought at this point is to wean me slowly off of the seizure medicine this time. We will see what the EEG says, probably know results tomorrow. In the meantime I am enjoying fine dining here. Appreciate prayers for my new room neighbor, he was told yesterday that he likely has 30 days if he isn't treated for leukemia. Also appreciate prayers for my last room neighbor in Hamilton who had a similar diagnosis."
One doctor described recovering from Car T brain related side effects like recovering from a concussion. I know I have certain sensitivities to things so I can agree with that. I have met with many medical people it seems, but today I met with Dr Myers, a neurologist. She is still waiting for the EEG of the brain but at this point is leaning towards either a fainting episode of some sort or a seizure. Her thought at this point is to wean me slowly off of the seizure medicine this time. We will see what the EEG says, probably know results tomorrow. In the meantime I am enjoying fine dining here. Appreciate prayers for my new room neighbor, he was told yesterday that he likely has 30 days if he isn't treated for leukemia. Also appreciate prayers for my last room neighbor in Hamilton who had a similar diagnosis."
On release date of December 8th I was told that the EEG of my brain was consistent with the MRI as far as Car T residual effects but that they still felt it was some sort of fainting episode. My heart test was clear so also thankful for that.
So how does one navigate the emotions of an up and down Journey. Is it always as simple as saying I will rejoice in trials and fear not because God is in control?
Personally I think it's a journey and a process and I think there are many Bible stories that illustrate this. It's easy for the why questions to come up, why me when things seem to be going well, why a bizarre fainting episode. I can say that many times over the last few months I have felt a little gloomy at times, but it's that gloominess or perhaps even fear that can Propel us to God. It seems no day is the same as I recover at home. Some days I wake up motivated and other days I wonder what was all going on in my subconscious overnight. It seems that what we do with these things is what matters most. So many times I am encouraged by digging into God's word or hearing from other people. It's not easy to do what you know is the right thing to do but at the end of the day God is our source, our strength. I think of many of the old hymns and they were written out of great anguish. The Psalms in the Bible were not written with an automatic quick turning to God. They take us through David's feelings of feelings neglected. I am so thankful that these things are included in the Bible and give us permission to be human for that is what we are. I am so glad that Satan's temptation of Jesus is included in the Bible. It demonstrates to us who we should turn to for our source of strength.
My calendar going forward seems quite busy with blood work monitoring, tests and a very intense vaccination schedule starting the end of January. Thankful for God that goes before us.
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